4 minutes ago (when I started writing this), I hit my 6 month lungaversary. I was on the phone with my 29, Kathryn Norris, for about half hour prior, as she hit her 6-month lungaversary also, on Dec 29th. I’d like to give a shout out to my donor above us, looking down on me, I am doing the best I can to keep that promise of putting these lungs to good use. You are one awesome person, I hope to meet your family one day. For now, keep rocking on up there and thank you again for these beautiful lungs. Thank you also to the surgeons at Duke, Nursing staff that
I wanted to write this blog post for some time now, just working on figuring out my time schedules and organizing life better since i am now getting back to living a somewhat ‘normal’ lifestyle. Growing up i often watched Claire’s youtube videos, a lot of us in the community did. Claire was born with Cystic Fibrosis, she was VERY open about
I have decided to move my blogging over here instead of Facebook. My last official blog update was July 17th. Life is good, no complaints, every week since being discharged my lung function has gone up 10%. I was at 19% going into transplant, today I am at 42%, I can honestly say I wake up every day just loving life. Being able to walk around with no cables attached, not having to do 45 minutes of treatments every morning and night.
Wrapping up this leg of the journey, that's right, the plan is to discharge me tomorrow. My final 6 of 6 chest tube was removed today, followed by catheter and epidural. All my IV antibiotics are finished. The IV antibiotics I have been on for the past two weeks are not to treat anything, they are to be proactive.
Wanted to give everyone an update on what's been going on. Had some set backs but like I say, it doesn't matter how far or fast of a step you do at anything in life, as long as you put one foot in front of the other, you will get to wherever you want to be. So I believe like day 8 or 9 I had to have the epidural in my spine replaced.