So i just got back from a little vacation, New Orleans! I drove down to Orlando, took Priscila out for a little V-day dinner (as friends). Now she doesn’t actually live in Orlando, she lives right above it though in Winter Park FL, which is gorgeous. Sometimes its just easier to say Orlando as people know of that way more than Winter Park. Drove down on the 14th, and on the 15th we left in the rental car. We decided to drive instead of air, as airfare was insanely expensive, and it gave me a chance to show her Panama City (i’ve been too) and she could show me Tallahassee
I am a little late on writing this, my 6 month bronch was about 2 weeks ago. A bronch is short for bronchoscopy, we get these often through out our post-tx life. We received them 1-2 times while still in the hospital right after transplant. And than 1 month after being released, 3 months, 6, 9 12, etc.. They go to every 6 months i believe eventually, and don’t know after that. A bronch is
4 minutes ago (when I started writing this), I hit my 6 month lungaversary. I was on the phone with my 29, Kathryn Norris, for about half hour prior, as she hit her 6-month lungaversary also, on Dec 29th. I’d like to give a shout out to my donor above us, looking down on me, I am doing the best I can to keep that promise of putting these lungs to good use. You are one awesome person, I hope to meet your family one day. For now, keep rocking on up there and thank you again for these beautiful lungs. Thank you also to the surgeons at Duke, Nursing staff that
I wanted to write this blog post for some time now, just working on figuring out my time schedules and organizing life better since i am now getting back to living a somewhat ‘normal’ lifestyle. Growing up i often watched Claire’s youtube videos, a lot of us in the community did. Claire was born with Cystic Fibrosis, she was VERY open about
I have decided to move my blogging over here instead of Facebook. My last official blog update was July 17th. Life is good, no complaints, every week since being discharged my lung function has gone up 10%. I was at 19% going into transplant, today I am at 42%, I can honestly say I wake up every day just loving life. Being able to walk around with no cables attached, not having to do 45 minutes of treatments every morning and night.